“There are days I look in the mirror at my grey, pasty, drawn-in face and say to myself “I miss you where did you go?””
I missed you, where did you go ?
Held Hostage By Our Bodies
“Living with a chronic illness feels like our bodies are holding us to ransom. We get no rewards for our attempts to function like a “normal” person.”
More Than Fibro Charity plea for local volunteers
“We are looking for local volunteers to facilitate face-to-face support group meetings which we hope to hold once every 4-6 weeks.”
The greatest revelation of my life
“In my life, there’s been one stand-out period of significant importance. It defined the rest of my existence. Surprisingly, falling ill, which resulted in the diagnosis of 3 chronic health conditions, isn’t it. However, it was the agitator of my transformation.”
When the party’s over
“Receiving my Fibromyalgia diagnosis did indeed feel like “the party was over” looking back on it. It was. It still is to some extent.”
“Let us make hay while the sun shines.”
“The weekend I just had was far from typical. I managed to have a “real” weekend, you know, like “normal” people do.”
In The Eye Of The Storm
“Fibromyalgia is like being caught in a wild, wrathful, winter storm. You could be stuck in it for days, weeks, months or even years.”
When you are refused adequate pain relief, what do you do? Where do you turn?
“So how are we meant to pay for alternative pain relief methods and why is the NHS not providing us with adequate assistance.”
“To those who think that I am lazy or faking it….” #Fibromyalgia
“The assumption is. That somehow because you can’t see it, it mustn’t be real.”
A Bad Day With Fibromyalgia
“. A symptom of Fibromyalgia is non-restorative sleep. I have Chronic Fatigue Syndrome as well as Fibromyalgia. So I experience it two-fold. “
