Ehlers-Danlos Syndromes (EDS)  is a group of life-long genetic conditions which affect the connective tissues of the whole body, often severely, making it more fragile. Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations, and digestive disorders.

The Ehlers-Danlos Support UK (EDS UK) was set up in 1987 to support, advise and inform those living with the Ehlers-Danlos syndromes.  Over 30 years later, we are the largest UK charity that exclusively represents and supports people with all types of EDS.

This week Emma Roddick, SNP MSP for the Highlands and Islands  welcomed the team from Ehlers-Danlos Support UK (EDS UK) to the Scottish Parliament this week for an exhibition.

Emma Roddick siad:

“I am delighted to of welcomed the team at Ehlers-Danlos Support UK to the Scottish Parliament this week to speak to MSPs about this very misunderstood, chronic condition.

“It is so important people are aware of EDS and the effects it can have on folk as it is often brushed off by GPs. I was very lucky to get a hypermobility diagnosis at a young age, but many only find out much later in life that there is a real, tangible explanation for their pain and other difficulties.

“I am really looking forward to MSPs from all parties getting the chance to speak to some of the team about EDS this week to gain a better understanding of the condition that myself and so many other folk across Scotland suffer with on a daily basis.”