Dear Orkney News,
What Brexit means to a kidney transplant patient in the highlands of Scotland – is this turning into a nightmare scenario?
I am concerned that my immunosuppressants may run out as it will become a logistical battle to get our lifesaving medications once the UK leaves the EU.
There must be no missed doses of medication- that is not an option .
If my kidney transplant fails I would need to be kept alive by a dialysis machine.
I lived this nightmare for 8 years before I received a transplant.
I have been given some insight about what is happening in so much as being more on the emphasis on talk rather than official guidelines.
I don’t feel there is any of sense of urgency and nothing for the wellbeing of patients – no effort at all being made to keep us informed .
According to a senior pharmacist in Raigmore Hospital talks are ongoing. That’s as nice as it goes but in no way is reassuring to those who are relying on lifesaving medication.
When I was on dialysis I just existed living hour by day, week by week, having my own celebrations that I made it through another treatment – or whether I woke up to a new day.
There needs to be a real plan by the powers that be. Having no information and not knowing that even I’m able to protect my health is a living nightmare.
We need our MSPs and MPS to not ignore our real concerns when even the pharmacists don’t know what’s happening.
Incidentally I’m still waiting on the Scottish Parliament to send me an official letter in reply to the concerns I have raised with them.
Yours, Malcolm Morrison, Inverness-shire